Clinical Trials in Pediatric Neurology: Dilemmas After the Trial

Vancouver Convention Centre
Vancouver, BC 

Welcome  

Amy Brin, MSN, MA, PCNS-BC  
Executive Director & CEO Child Neurology Foundation 

The Family’s Perspective  

Betsy Pilon
Parent and Executive Director
Hope for HIE 

The PI’s Perspective  

M. Scott Perry, MD
Head of Neurosciences
Jane and John Justin Institute for Mind Health

After FDA Approval  

Michael Storey, PharmD, MS 
Medication Use Strategist
Nationwide Children’s Hospital 

Key Takeaways and Learnings 

Erika Fullwood Augustine, MD, MS 
Associate Chief Science Officer and Director of the Clinical Trials Unit
Kennedy Krieger Institute 

Resources 

2023 Symposium Slides

2023 Clinical Trial Q&A

CNF Clinical Trial Page 

CNF Family Support Program  

CNF Disorder Directory 

Courageous Parent Network  

CISCRP Search Clinical Trials Tool  

Trials Today 

Undiagnosed Disease Network 

Rare Diseases Clinical Research Network (RDCRN) Contact Registry 

RARE-X 

Thank you to our 2023 sponsors

Industry Partners 

Advocacy Partners