#NeuroHero

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#NeuroHero
Family Support Program Grows with New Hires

The Child Neurology Foundation is excited to announce the addition of an incredible woman to our Family Support Program staff: Vivian Medrano, Social Worker &…

Harnett Grant Recipient Shares Their Family’s Infantile Spasms Story

The Child Neurology Foundation helps families throughout the course of their journey. Thanks to the generous support of the Harnett Family, the Child Neurology Foundation…

#NeuroHero Story: Rylae-Ann’s Diagnostic Journey With a Rare Disease

  Richard Poullin and Judy Wei live in Thailand with their 4-year-old daughter Rylae-Ann. Although Judy says her pregnancy and delivery were uncomplicated, when Rylae-Ann…

#NeuroHero Hudson’s Story of Hope

During our Child Neurology Awareness Day #NeuroHero campaign in October, we had several families reach out to us to share their #NeuroHero stories. One of…

The Value of Family Support When Living with Dravet Syndrome

Charlotte Martenz, 17 years old, experienced her first seizure at 4 months old and was diagnosed with Dravet syndrome in 2006 when she was nearly…

Staying ahead of a progressing disease: How Jodie and Luke Bolt are Neuro Heroes

In honor of Child Neurology Awareness Day on Oct. 29, we are sharing stories from the Neuro Heroes in our community. Learn more about Child Neurology…

Back-to-School Tips from Mom, Son Who Helped Pass New Jersey’s “Paul’s Law”

In honor of Child Neurology Awareness Day on Oct. 29, we are sharing stories from the Neuro Heroes in our community. Learn more about Child Neurology…

Finding Courage Through Community: How Ereka Williams is a #NeuroHero

In honor of Child Neurology Awareness Day on Oct. 29, we are sharing stories from the Neuro Heroes in our community. Learn more about Child…

What is a #NeuroHero?

Reflections from Executive Director & CEO Amy Brin  As we prepare for Child Neurology Awareness Day on Oct. 29, a day to celebrate the strength…

A #NeuroHero Story: Gloria & Grace’s Journey with Dravet Syndrome

In honor of Child Neurology Awareness Day on Oct. 29, we are sharing stories from the Neuro Heroes in our community. Learn more about Child…

Digital Access & Telehealth Provide Hope: The Kimball Family’s #NeuroHero Story

In honor of Child Neurology Awareness Day on Oct. 29, we are sharing stories from the Neuro Heroes in our community. Learn more about Child…

The Digital Access Difference

How CNF’s Digital Access Program made a difference for the Torp family  Access to technology is no longer a luxury. In this connected world, it’s…

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