In 2022, CNF will convene its first-ever Patient Experience Bureau (PEB) consisting of parents, caregivers, and young adults to raise our shared awareness of community needs, and enable staff and the Board of Directors to better serve patients and families. We’re seeking individuals with a wide range of backgrounds and experiences who are willing to share their stories and connect with peers from around the country.
Selected individuals will attend 2-3 virtual PEB meetings between June and December 2022, to be scheduled based on participants’ availability. Individuals will receive an honorarium for their involvement.
We are looking for 15 people (caregivers or young adult patients) to join:
Participants must be a U.S. citizen who is willing to share.
Participants will receive an honorarium, as well as additional resources for tech support or child care.
Applications are due on Friday, April 15 and participants will be notified by May 6.
To participate, please fill out the application by clicking on the link below.
We use cookies to optimize our website and our service.
Functional
Always active
The technical storage or access is strictly necessary for the legitimate purpose of enabling the use of a specific service explicitly requested by the subscriber or user, or for the sole purpose of carrying out the transmission of a communication over an electronic communications network.
Preferences
The technical storage or access is necessary for the legitimate purpose of storing preferences that are not requested by the subscriber or user.
Statistics
The technical storage or access that is used exclusively for statistical purposes.The technical storage or access that is used exclusively for anonymous statistical purposes. Without a subpoena, voluntary compliance on the part of your Internet Service Provider, or additional records from a third party, information stored or retrieved for this purpose alone cannot usually be used to identify you.
Marketing
The technical storage or access is required to create user profiles to send advertising, or to track the user on a website or across several websites for similar marketing purposes.
We use cookies to optimize our website and our service.
Functional
Always active
The technical storage or access is strictly necessary for the legitimate purpose of enabling the use of a specific service explicitly requested by the subscriber or user, or for the sole purpose of carrying out the transmission of a communication over an electronic communications network.
Preferences
The technical storage or access is necessary for the legitimate purpose of storing preferences that are not requested by the subscriber or user.
Statistics
The technical storage or access that is used exclusively for statistical purposes.The technical storage or access that is used exclusively for anonymous statistical purposes. Without a subpoena, voluntary compliance on the part of your Internet Service Provider, or additional records from a third party, information stored or retrieved for this purpose alone cannot usually be used to identify you.
Marketing
The technical storage or access is required to create user profiles to send advertising, or to track the user on a website or across several websites for similar marketing purposes.