Genetic Testing - Child Neurology Foundation

Each year, we identify an important education initiative that impacts the entire child neurology community. In 2020, our focus was on Shortening the Diagnostic Odyssey, which included genetic testing and the role it can play in helping to identify and uncover potential issues earlier in the diagnostic journey.

Because of it’s importance, and as advances in genetic testing progress, we’ll continue to develop resources so you can make informed decisions about your child’s health. So, take a look around and check back often. We hope you’ll find some useful information here to help you make an informed decision on genetic testing.

In this guide for parents and caregivers, we cover the:

1. Benefits of genetic testing
2. Types of genetic tests
3. Cost of genetic testing
4. Role of genetic counseling

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Knowing the Name of a Gene Can End Your Diagnostic Odyssey

In this webinar, we hear from two experts about the next steps you can take on your family’s journey with a rare condition.

The Role of Genetic Testing to Shorten the Diagnostic Odyssey

In this 60-minute session, we discuss the role that genetic testing can play in helping to shorten the time to diagnosis.

Genetic testing can be an important piece of shortening your child’s diagnostic odyssey. But one of the barriers to testing remains insurance coverage and your financial responsibility for these tests. In a three part series, experts will provide guidance and strategies for you to feel more prepared in understanding what your insurance covers, and if necessary, preparing for an appeal.

Episode I: Understanding Your Insurance

Gathering information and getting organized is the first step! This first of three episodes will help you take steps toward understanding your insurance policy and your coverage benefits.

Key Takeaways:

Understanding your Summary of Benefits

Tips for Staying Organized

Understanding Insurance Definitions

Understanding Your Insurance Plan Infographic

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Access CN Navigating Insurance Infographic

Episode 2: How to Appeal a Denial from Your Insurance

If your procedure, test, or healthcare provider visit is denied, you have a right to appeal the decision of your insurance company. This episode will help you understand if your denial is valid and prepare for the appeals process.

Key Takeaways:

Understand why your service was denied

Understand if the denial was for a prior authorization or an insurance claim

Feel confident knowing the steps of your insurance company’s appeal process, and know when to request an external review

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Episode 3: Resources and Tips for Navigating Insurance for Genetic Testing
(Coming in February)

Navigating insurance for genetic testing can be challenging and frustrating, but you are not alone. There are resources and tips that can help you with your insurance questions. This episode will provide you with resources in your area and nationally that can make the process easier and have you and your family feeling more supported.