Navigating the New Normal

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Navigating the New Normal

The COVID-19 pandemic is an unavoidable part of life and, while that doesn’t seem to be changing any time soon, we are moving towards a new version of what is considered normal life.

CNF has always worked to respond to the greatest needs of the child neurology community. At this time, the greatest need is to provide children and families with neurologic conditions with the supports that they need to care for their children in their homes and the tools they need to navigate this new normal.

In response to the COVID-19 pandemic, CNF has pivoted to create targeted resources to support children and families in our community during these unprecedented times.

This page will act as a jumping off point for CNF’s COVID-19 Content, and other resources that we believe can help the larger child neurology community in the time of COVID-19. Think of this as your one stop shop for resources and supports during the COVID-19 pandemic.

We will get through this together.

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BACK TO SCHOOL

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ORIGINAL CNF COVID-19 CONTENT

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EXTERNAL COVID-19 RESOURCES

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CNF RISE FAMILY and RISING TIDES GRANTS

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CNF’S COVID-19 ADVOCACY

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SUPPORT CNF’s COVID-19 RESPONSE

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TALK TO A PEER SUPPORT SPECIALIST

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TOGETHER WE WILL GET THROUGH THIS

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COMMUNITIES OF PRACTICE

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OUR STORIES

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Message from Child Neurology Foundation’s CEO and Executive Director, Amy Brin

CNF has come out with original, fresh content every single week focusing on the impact of COVID-19 and the ever-changing landscape of our world on children with neurologic conditions and their families. We are grateful to all our partners who have worked with us to create these resources and excited that the community is engaging with our content.

The CDC has published a statement specifically stating that “Children who are medically complex, who have neurologic, genetic, metabolic conditions, or who have congenital heart disease are at higher risk for severe illness from COVID-19 than other children.” This isn’t unexpected news but it reinforces our strategy to support families and their children staying safe at home.

As we receive new information, CNF will continue to respond to the greatest needs to help serve the child neurology community. We will continue to provide regular updates to our community via our blog, social media channels (linked on side menu), and newsletters.

CNF thanks our 2020 partners - A Little Help Foundation, Amicus Therapeutics, Biogen, Bluebird Bio, Eisai, Illumina, Mallinckrodt Pharmaceuticals, Neurelis, Nick and Gardiner Lapham, Ovid Therapeutics, Retrophin, UCB, Ultragenyx, Upsher-Smith Laboratories and the Winokur Family Foundation - for their support.

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