Registration Opens November 15th, 2024
***Course opens Sunday, November 24th and runs through December 22nd
Cost: $10 per participant
(If the cost causes financial hardship, please reach out to [email protected] for a coupon code.)
Please check back for more course offerings!
From Surviving to Thriving: Building a Community to Support Mental Well-Being
From Surviving to Thriving: Building a Community to Support Mental Well-Being is intended to provide support for families with children with complex healthcare needs. Families will learn strategies to successfully manage the challenges of parenting a child with a neurologic condition so they can protect the mental well-being of themselves and members of their family. To allow for more flexibility for participants this training will be 100% virtual. Participants will be able to talk with other participants through an online forum. Forums will be facilitated by our certified counselor, Brad Thompson. ***Course opens November 24th and runs through December 22nd.
Goals of the Training:
Support families who have children with neurologic conditions by learning about:
- Survival Responses – participants will learn how to manage stress responses and re-occurring grief
- Partnering Techniques – participants will learn how to strengthen relationships to support the whole family
- Healing – participants will learn how to use community as a source of strength and will learn how to shift their mindset to persist through challenges
Navigating Insurance for Genetic Testing
Genetic testing can be an important piece of shortening your child’s diagnostic odyssey. But one of the barriers to testing remains insurance coverage and your financial responsibility for these tests. In a three part series, experts will provide guidance and strategies for you to feel more prepared in understanding what your insurance covers, and if necessary, preparing for an appeal.
Episode I: Understanding Your Insurance – NOW AVAILABLE!
Gathering information and getting organized is the first step! This first of three episodes will help you take steps toward understanding your insurance policy and your coverage benefits.
Key Takeaways:
- Understanding your Summary of Benefits
- Tips for Staying Organized
- Understanding Insurance Definitions
Episode II: How to Appeal a Denial from Your Insurance (Coming in December 2024)
If your procedure, test, or healthcare provider visit is denied, you have a right to appeal the decision of your insurance company. This episode will help you understand if your denial is valid and prepare for the appeals process.
Key Takeaways:
- Understand why your service was denied
- Understand if the denial was for a prior authorization or an insurance claim
- Feel confident knowing the steps of your insurance company’s appeal process, and know when to request an external review
Episode III: Resources and Tips for Navigating Insurance for Genetic Testing (Coming in February 2025)
Navigating insurance for genetic testing can be challenging and frustrating, but you are not alone. There are resources and tips that can help you with your insurance questions. This episode will provide you with resources in your area and nationally that can make the process easier and have you and your family feeling more supported.
Dates: On-Demand
CME: 1 Credit Upon Completion
Suggested Donation Amount: $25
*Free with CNF Discount Code: CNF25
Navigating Clinical Trials in Pediatric Neurology
Clinical trials in pediatric neurology can be complex. Doctors are often tasked with trying to decide whether clinical trials are available, accessible, and appropriate for their patients. In this course, you will learn how to navigate clinical trials with pediatric patients through the following topics:
- The Importance of Clinical Trials
- A Patient Family’s Experience with Clinical Trials
- Supporting Participation in Clinical Trials
- The Clinician’s Role in Clinical Trials
- Best communication Practices before and During a Clinical Trial
- The Roadblocks to a Successful Clinical Trial
- Best Resources for Clinicians and Families
CME Designation
This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of the Minnesota Medical Association and Child Neurology Foundation. The Minnesota Medical Association (MMA) is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians.
The Minnesota Medical Association designates this enduring activity for a maximum of 1 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
Dates: On-Demand
CME: 1 Credit Upon Completion
Suggested Donation Amount: $25
*Free with CNF Discount Code: CNF25
Shortening The Diagnostic Odyssey
Welcome to the Child Neurology Foundation’s course on Shortening the Diagnostic Odyssey:
This is a one-hour course focused on educating providers about the impact of genetic testing for improving the management of pediatric neurology conditions. You will learn how to identify and overcome barriers to getting testing and how to talk with families about test results.
Learning Objectives:
- Better understand the benefits of genetic testing, specifically whole exome sequencing, in the prognosis and medical management of pediatric neurologic conditions
- Identify barriers and overcome obstacles that delay or prevent access to genetic testing
- Apply genetic counseling approached to test result disclosure
CME Designation
This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of the Minnesota Medical Association and Child Neurology Foundation. The Minnesota Medical Association (MMA) is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians.
The Minnesota Medical Association designates this enduring activity for a maximum of 1 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
Dates: On-Demand
CME: 1 Credit Upon Completion
Suggested Donation Amount: $25
*Free with CNF Discount Code: CNF25
Improving Transition of Care: Understanding the Differences Between Pediatric and Adult Care to Improve Transitions for People with IDD
Transitioning neurology care from pediatric to adult providers is always difficult, but it is especially challenging for young people with IDD. This 1-hour webinar will help health care providers improve their patients’ transition by learning the differences between pediatric and adult care to address and communicate those changes. Experts will share what pediatric specialists need to provide adult providers and how to help set expectations for the transition. Participants will also learn what adult physicians need to know about the pediatric care team, how to help patients build an adult care team, and how to support their patients in navigating the new adult system.
Learning Objectives: As a result of this educational session, participants will be able to:
- Identify the differences between pediatric and adult neurology care.
- Utilize best practices for supporting pediatric patients with IDD transition to adult care.
- Identify resources available to support adult neurology patients with IDD.
CME Designation
This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of the Minnesota Medical Association and Child Neurology Foundation. The Minnesota Medical Association (MMA) is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians.
The Minnesota Medical Association designates this enduring activity for a maximum of 1 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
101 – Family Support Specialist Training- Group 1 (Purple Group)
Registration opens September 3, 2024
*for early registration please contact [email protected]
Dates: September 30, 2024 – November 6, 2024
Contact Hours: 12 contact hours upon completion
Cost: $115 per participant
Family Support Specialist Training – 101
The CNF Family Support Specialist Training is intended to provide education for volunteers and staff at patient advocacy organizations who support families through the social and emotional challenges of diagnosis, treatment, and management in the child neurology community.
Goals of the Training:
Provide a solid foundation in the basics of family support by sharing:
- Best Practices – giving family support specialists the information they need to provide high quality support to their community
- Common Language – the basis for ongoing conversation, education, and growth in the field of caregiver support serving across disease states.
- Community of Practice – gives participants a space for shared experience and encouragement in the future
What will the training cover?
To allow for more flexibility for participants this training will be 100% virtual. The training will consist of three modules to be completed over a six-week period.
Topics covered include:
- Family Support 101
- Facilitation
- Listening
- Self-Care
- Grief
- Empathy & Boundaries
- School Relationships
- Connecting to Resources
101 – Family Support Specialist Training- Group 2 (Blue Group)
Registration opens September 3, 2024
*for early registration please contact [email protected]
Dates: September 30, 2024 – November 6, 2024
Contact Hours: 12 contact hours upon completion
Cost: $115 per participant
Family Support Specialist Training – 101
The CNF Family Support Specialist Training is intended to provide education for volunteers and staff at patient advocacy organizations who support families through the social and emotional challenges of diagnosis, treatment, and management in the child neurology community.
Goals of the Training:
Provide a solid foundation in the basics of family support by sharing:
- Best Practices – giving family support specialists the information they need to provide high quality support to their community
- Common Language – the basis for ongoing conversation, education, and growth in the field of caregiver support serving across disease states.
- Community of Practice – gives participants a space for shared experience and encouragement in the future
What will the training cover?
To allow for more flexibility for participants this training will be 100% virtual. The training will consist of three modules to be completed over a six-week period.
Topics covered include:
- Family Support 101
- Facilitation
- Listening
- Self-Care
- Grief
- Empathy & Boundaries
- School Relationships
- Connecting to Resources
Family Support Specialist Training – 201
The CNF 201-Family Support Specialist Training is designed to provide advanced education for volunteers and staff at patient advocacy organizations who support families facing the complex challenges of diagnosis, treatment, and management within the child neurology community.
Goals of the Training
Deepen Expertise in Family Support by Focusing On
- Managing Stress Responses
Equip participants with techniques to manage their stress responses and effectively separate from others’ trauma. - Changing Mindset
Guide participants in developing a resilient mindset to persist through school challenges and support siblings of children with complex healthcare needs. - Healing and Resilience
Foster a sense of community as a source of strength and teach participants how to use storytelling as a tool for healing and building future resilience.
What Will the Training Cover?
To offer greater flexibility for participants, this training will be 100% virtual, consisting of three modules to be completed over a six-week period.
Topics Covered Include:
- Managing StressUnderstanding our stress response
- Separating from others’ trauma
- Changing Our Mindset
- The shift and persist mindset for school
- Supporting siblings with a “bigger than self” mindset
- Healing
- Ensuring marriages/community are a source of strength for the journey
- Telling your story to heal and build resilience for the future
