What Does a Portrait of a Rare Caregiver Look Like? The National Alliance for Caregiving, in partnership with Global Genes, recently released Rare Disease Caregiving in America, a…
We want to change isolation to empowerment! The CNF/Global Genes Rare Child Neurology Workgroup wants to understand the needs of children living with rare genetic conditions that…
New Pilot Project Improving communication between pediatric neurologists and the families of children living with epilepsy “A majority of families wanted to discuss their child’s risk…
Parents/caregivers of 12 to 30-year olds living with a complex neurologic condition, let’s talk! CNF’s new Caregiver Perspectives on Transitions Project is interested in your experiences with different…
Please visit the January 30, 2018 O&A for more information. Don’t miss out on future Opportunities & Announcements from the child neurology community – subscribe…
Please visit the January 23, 2018 O&A for more information. Don’t miss out on future Opportunities & Announcements from the child neurology community – subscribe…
Please visit the January 18, 2018 O&A for more information. Don’t miss out on future Opportunities & Announcements from the child neurology community – subscribe…
Happy New Year from Child Neurology Foundation! Like many of you, we are jumping right into the new year —Â a time of excitement, new…
 Tomorrow, December 1st, Kicks Off Infantile Spasms Awareness Week (ISAW) Identifying infantile spasms (IS) is critical for parents, caregivers, and providers. The earlier a…
 “No journey is the same, but it’s nice to know other people understand.” “I came across your site and I would like for you…
It seems that every day over the next week has a special name: Black Friday, Small Business Saturday, Cyber Monday, so CNF has decided that today is…
Let’s Talk About Sudden Unexpected Death in Epilepsy (SUDEP): A Conversation with Parents and Doctors Webinar | November 17, 2017 | 12-1:15 pm (ET) | …
Social Media Network for CNF Partners When we introduced our new CNF Partners email list earlier this year, we conveyed that Pathways, our monthly e-Newsletter…
Outcomes & Resources | 2017 CNF Educational Initiative: SUDEP CNF’s Board of Directors selected Sudden Unexpected Death in Epilepsy (SUDEP) as the…
Our Tuesday “O&A” is typically a single topic email, but SO much has happened in the past week while CNF was at the annual Child…
CNF Approved for a $50,000 Funding Award by the Patient-Centered Outcomes Research Institute – The Child Neurology Foundation (CNF) has been approved for…
NOMINATIONS NOW ACCEPTED FOR:Â ISÂ HOPE AND IS HEROES AWARDS The Infantile Spasms Action Network will once again sponsor Infantile Spasms Awareness Week from December 1…
Applications for the 2017 Harnett Mini-Grant: Now Being Accepted In January 2014, the Harnett Mini-Grant was founded by Mr. Michael Harnett, as an enduring memorial…
CNF is looking ahead to 2018. We always give our partners a voice in where we should focus our efforts next… so please let us…
Child Neurology Foundation is excited to share an exceptional resource, developed for families, by our partners at Pediatric Stroke Warriors. For some, the very thought of…