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Breaking Down The New CDC Milestones With Dr. Paul Lipkin

Pediatric development expert on what the new CDC milestones mean for you  In February of 2022, the Centers for Disease Control (CDC) and American Academy…

CNF Recognized as a Healthy People 2030 Champion

LEXINGTON, KY., May 3, 2022— The Child Neurology Foundation (CNF) is pleased to be recognized by the Office of Disease Prevention and Health Promotion (ODPHP)…

The Digital Access Difference

How CNF’s Digital Access Program made a difference for the Torp family  Access to technology is no longer a luxury. In this connected world, it’s…

Q&A with Breanna McCormley, Director of Development

Coming from the Leukemia & Lymphoma Society, and before that the Chordoma Foundation, Breanna has established herself as a leader in the rare disease nonprofit fundraising…

CNF Partners with Unite Us to Connect Families with Critical Resources

CNF partners are invited to participate in the pilot program – to learn more about the Neurology Social Services Network, watch our video.  LEXINGTON, KY…

5 Tips for Your First Child Neurologist Visit

While it might feel like a relief to finally have a referral for a child neurologist after what could have been a months-, or years-long,…

CNF – CNS Joint Statement on the Invasion of Ukraine

            CNF – CNS Joint Statement on the Invasion of Ukraine The Child Neurology Foundation envisions a world in which…

Share Your Story Through  Our Patient Experience Bureau

Your story matters. In 2022, CNF will convene its first-ever Patient Experience Bureau (PEB) consisting of parents, caregivers, and young adults to raise our shared…

Caring for Our Caregivers: What we heard in the 2021 Needs Assessment

Families living with neurological diagnoses show unbelievable courage and resilience each day. And since it’s our mission to provide them with the tools and resources…

We’re Here For You On #RareDiseaseDay: A Resource Roundup

Rare diseases are anything but rare to us. According to the National Institute of Health, 40% of rare disorders have a neurological component, and 90%…

Second Annual Seizure Action Plan Awareness Week: February 14-21, 2022

From February 14 to 21, the Second Annual Seizure Action Plan Awareness Week will highlight the importance of having a seizure action plan in place. The…

Child Neurology Foundation CEO Amy Brin Appointed to National Institutes of Health Council

Child Neurology Foundation CEO Amy Brin Appointed to National Institutes of Health Council Brin to serve on National Advisory Neurological Disorders and Stroke Council LEXINGTON,…

Supporting Careers in Child Neurology: Scholarships Now Open

We leave no stone unturned as we look for ways to support our families and advance the field of child neurology. That’s why we’re always…

What it Takes to Become a Family Support Specialist

When Kathy Leavens – mother of four boys, two of whom were diagnosed with neurologic conditions – found herself spending hours researching symptoms, treatments, or…

CNF Strategic Plan 2022-2024

This document gives an overview of the goals we are setting out for the next three years, as well as the initial deliverables we will…

Child Neurologist New Visit Toolkit

We encourage you to fill out the Child Neurologist New Visit Toolkit prior to your first visit with a neurologist or when visiting a new neurologist. Download…

2021 CNF Diversity, Equity, and Inclusion Report

In 2020 CNF began a journey to better understand how it could play a part in addressing health disparities and inequities experienced by the child neurology community.

Inaugural Child Neurology Day On Oct. 29!

October 29, 2021 is the inaugural Child Neurology Awareness Day to increase understanding of childhood neurologic conditions, highlight the spectrum of support for families, and…

2021 CNF RISE Family Grants and the Harnett Grant

Applications for the 2021 CNF RISE Family Grants and the Harnett Grant are now OPEN! We have eleven $1,000 grants to help families cover food,…

Welcome To The Board – Dr. Sonika Agarwal

Initially educated and trained in India, Dr. Agarwal trained in child neurology at Baylor College of Medicine/Texas Children’s Hospital. Dr. Agarwal is currently an Assistant…

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