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Dec. 1-7 is Infantile Spasms Awareness Week

Infantile Spasms (IS) are a medical emergency. Infantile spasms are a rare, but very serious type of seizure. Infantile spasms are caused by a condition in…

Public Health Message: Surge of Respiratory Illnesses

Our friends at the Maternal and Child Health Bureau have shared with us that with winter still more than a month away, they are already…

Amy Brin on the Value of Nonprofit Collaboration

CNF Executive Director and CEO Amy Brin was recently featured on the Successful Nonprofits podcast to talk about CNF’s unique ability to be a convening…

Welcome Three New Members to the Board!

Welcome! This month CNF welcomed three new members to the board: Madeline Chadehumbe, MD Peter Kang, MD Monique Terrell Madeline Chadehumbe, MD Dr. Chadehumbe is…

The Value of Family Support When Living with Dravet Syndrome

Charlotte Martenz, 17 years old, experienced her first seizure at 4 months old and was diagnosed with Dravet syndrome in 2006 when she was nearly…

Taking Our Mission to D.C.: Why and How We Advocate For #NeuroHeros

Did you know 1 in 5 children in the US live with a neurologic condition, many of which require life-long management of physical, cognitive, emotional,…

Congratulations to our 2022 Scholarship and Grant Recipients!

Since 2001, the Child Neurology Foundation has awarded over $4.1 million dollars in research funding and scholarships to young investigators and medical students in pursuit…

Staying ahead of a progressing disease: How Jodie and Luke Bolt are Neuro Heroes

In honor of Child Neurology Awareness Day on Oct. 29, we are sharing stories from the Neuro Heroes in our community. Learn more about Child Neurology…

Back-to-School Tips from Mom, Son Who Helped Pass New Jersey’s “Paul’s Law”

In honor of Child Neurology Awareness Day on Oct. 29, we are sharing stories from the Neuro Heroes in our community. Learn more about Child Neurology…

Finding Courage Through Community: How Ereka Williams is a #NeuroHero

In honor of Child Neurology Awareness Day on Oct. 29, we are sharing stories from the Neuro Heroes in our community. Learn more about Child…

What is a #NeuroHero?

Reflections from Executive Director & CEO Amy Brin  As we prepare for Child Neurology Awareness Day on Oct. 29, a day to celebrate the strength…

A #NeuroHero Story: Gloria & Grace’s Journey with Dravet Syndrome

In honor of Child Neurology Awareness Day on Oct. 29, we are sharing stories from the Neuro Heroes in our community. Learn more about Child…

Brendan Michael Harnett Infantile Spasms Mini-Grant for Families

2024 Harnett Grant Thanks to the generous support of the Harnett Family, CNF is able to provide one $1,000 grant to a family with a…

Digital Access & Telehealth Provide Hope: The Kimball Family’s #NeuroHero Story

In honor of Child Neurology Awareness Day on Oct. 29, we are sharing stories from the Neuro Heroes in our community. Learn more about Child…

2022 Needs Assessment Data: A Snapshot of the CNF Community & Caregiver Data

To continue to serve as a hub for the child neurology community, our organization regularly assesses the needs of our patients, caregivers, and neurologists. That’s why…

Call for CNF Board Nominations

CNF is excited to open a community-wide call for nominations to its Board of Directors! We seek Board members who share CNF’s commitment to serve…

The Child Neurology Foundation (CNF) and the Child Neurology Society (CNS) work on behalf of children and families living with neurologic conditions within the United…

The Impact of School Violence on Children

A Letter from Dr. Anup Patel, President of CNF Board of Directors, and Dr. Bruce Cohen, President of the Child Neurology Society   The end…

CNF advises White House on Digital and Community Health Programs

Last month, CNF had the opportunity to speak with the White House Office of Science & Technology Policy (OSTP) about our Digital Access, Transitions of…

Palliative Care vs. Hospice: Amy Brin on AAP’s New Guidelines

CEO Amy Brin on the difference, new AAP guidelines, and what families and doctors should know about palliative care In my years of experience working…

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