Author Name: Allyson Eyermann Publish Date: September 24, 2024 Unseen is a documentary that invites viewers into the often-overlooked world of caregivers of children, offering an…
Author Name: Kim Hindery, Senior Program Manager, Child Neurology Foundation Publish Date: September 6, 2024 Introduction In this blog post, I reflect on my personal…
August 20, 2024 Martina Bebin, MD, MPA Director, UAB Tuberous Sclerosis Clinic With the advances in drug development and the potential for gene therapy on…
Introduction: The Unforeseen Journey In January 2018, my 7-month-old baby experienced a major ischemic stroke. We have no known medical cause. Brain injury, disability, and…
Understanding the Challenges of Transitioning from Pediatric to Adult Neurology Care We’ve heard through many channels over the years that transitioning their medically complex youths…
I'm Haley, a dedicated social worker at Hope for HIE, where my journey uniquely intertwines professional expertise with my personal experience as a parent. This…
The path to understanding and treating genetic neurodevelopmental disorders in children can be long and fraught with uncertainty. The Child Neurology Foundation is deeply committed…
It isn’t always easy, but I think it is important for us as parents to share our stories. Our experiences can support and strengthen others.…
Alyssa Edwards and Dr. Alexander Cohen Reflecting on the journey that has unfolded over the past few years, I am overwhelmed with gratitude and inspired…
Every year, our partners at the American Academy of Neurology host a week-long conference for neurologists to gather and learn from each other at their…
Kathie Bishop, Ph.D., knows exactly what it takes to lead cutting-edge therapeutics for neurologic and rare diseases from research to development to changing lives for…
Life for the Heimburger family doesn’t look the way they imagined. But it also doesn’t look quite as different as they once thought it would.…
Maria Kefalas, mother of Cal and author of ” Harnessing Grief: One Mother’s Quest for Meaning and Miracles,” shares her family’s remarkable journey.
The new book When Your Child Has a Chronic Medical Illness: A Guide for the Parenting Journey was released earlier this year. Both authors sat…
You are not alone. Millions of people face mental health concerns every year; the latest data from the National Alliance on Mental Health shows that…
Here is information on behavioral therapy to help you make good decisions for your child and managing difficult behaviors.
Changing the lens through which parents view their child’s behavior also changes the way they can approach it. Learn about the brain-first approach.