CNF

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On Transitioning Into Adult Care

Building new relationships can be as challenging as it is rewarding. Many families face uncertainty when connecting with a new neurologist that will help their…

Getting to know the CNF team – Phillip Pearl, MD

Every week, we’re sharing an interview with the a member of the CNF community, starting with our staff, Board of Directors. This week, get to…

Getting to Know the CNF Team – Katherine Barnhart

Meet Katherine Barnhart. What’s your role at CNF? Executive Assistant to Amy Brin, Executive Director/CEO of CNF How do you spend your time when you’re…

2019 Peer Support Best Practices Workshop

Save the date! On December 5th in Baltimore, Maryland, CNF will be hosting our second annual Peer Support Best Practices Workshop (formerly Peer Support Bootcamp).…

Getting to know the CNF Team – Stephen M. Peters

This week on the blog, we’re getting to know one of the members of our Board of Directors. Meet Stephen Peters. Tell us what you…

Getting to know the CNF Team – Katie Hentges

Each week, on the CNF blog, we’re sharing a post about a member of the CNF community; starting with our Staff, Board of Directors, and…

Getting to know the CNF Team – Amy Brin

Over the coming months, we’ll be sharing short interviews with the CNF staff, Board of Directors, and Corporate Advisory Board, with our community. In the…

2019 Child Neurology Foundation Neurodevelopmental Disabilities Summer Scholarship Winner

Every year, CNF selects a promising medical student, with an interest in child neurology, to receive the Child Neurology Foundation Neurodevelopmental Disabilities Summer Scholarship. This…

CNF’s Statement on the FDA’s May 31st CBD Hearing

On May 31st, 2019, the FDA held a public hearing, “to obtain scientific data and information about the safety, manufacturing, product quality, marketing, labeling, and sale of products…

CNF at the 2019 AANAM

In May of 2019, CNF staff attended the 71st American Academy of Neurology Annual Meeting (AANAM), which was held in Philadelphia. This is the biggest…

New Policies to Guide CNF Engagement

With great power comes great responsibility. Right? Or at least some clearly defined terms for how you work. As CNF grows, it’s been important to…

Behavior Management

We explore the existing chasm between healthcare providers’ ability to offer behavior management support guidance and families’ desires to have access to the best treatment…

CNF Core Values

If you’ve visited CNF’s About Us page before, you’ve probably read our Mission and Vision Statements. Our Vision: A world in which all children affected by…

See you an AAN!

CNF staff is busy getting ready for the upcoming American Academy of Neurology Annual Meeting held May 4th to 11th in Philadelphia. CNF is in…

1:26 The Art of Epilepsy 2019: Call to Artists

2019 Call for Artists This fall, CNF and the Child Neurology Society  are partnering with the Hidden Truths Project for 1:26 the Art of Epilepsy…

IT startup launches software to encourage physician-family conversations about epilepsy

NEWS RELEASE INDIANAPOLIS — Physicians can now be alerted to pediatric patients’ risk of sudden unexpected death in epilepsy, or SUDEP, during routine primary care…

A RARE conversation: RARECast podcast interview with Amy Brin

Just before the holidays, our own Amy Brin was a guest on the RARECast podcast, a podcast by Global Genes that’s hosted by Daniel Levine. RARECast…

CNF Top 8 of 2018

As this year draws to a close and we get ready for the year ahead, it’s important to look back at everything we’ve accomplished in…

Apply Now for CNF Family Grants

In 2014, the Harnett Grant was founded by Mr. Michael Harnett, as an enduring memorial to his nephew, Brendan Michael Harnett. Brendan was diagnosed with infantile spasms…

Seeking Family Perspectives on Transitions

Are you a parent or caregiver of an individual age 12-30 years living with a complex neurologic condition who is not expected to live fully…

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