CNF

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2019 Child Neurology Foundation Neurodevelopmental Disabilities Summer Scholarship Winner

Every year, CNF selects a promising medical student, with an interest in child neurology, to receive the Child Neurology Foundation Neurodevelopmental Disabilities Summer Scholarship. This…

CNF’s Statement on the FDA’s May 31st CBD Hearing

On May 31st, 2019, the FDA held a public hearing, “to obtain scientific data and information about the safety, manufacturing, product quality, marketing, labeling, and sale of products…

CNF at the 2019 AANAM

In May of 2019, CNF staff attended the 71st American Academy of Neurology Annual Meeting (AANAM), which was held in Philadelphia. This is the biggest…

New Policies to Guide CNF Engagement

With great power comes great responsibility. Right? Or at least some clearly defined terms for how you work. As CNF grows, it’s been important to…

Behavior Management

We explore the existing chasm between healthcare providers’ ability to offer behavior management support guidance and families’ desires to have access to the best treatment…

CNF Core Values

If you’ve visited CNF’s About Us page before, you’ve probably read our Mission and Vision Statements. Our Vision: A world in which all children affected by…

See you an AAN!

CNF staff is busy getting ready for the upcoming American Academy of Neurology Annual Meeting held May 4th to 11th in Philadelphia. CNF is in…

1:26 The Art of Epilepsy 2019: Call to Artists

2019 Call for Artists This fall, CNF and the Child Neurology Society  are partnering with the Hidden Truths Project for 1:26 the Art of Epilepsy…

IT startup launches software to encourage physician-family conversations about epilepsy

NEWS RELEASE INDIANAPOLIS — Physicians can now be alerted to pediatric patients’ risk of sudden unexpected death in epilepsy, or SUDEP, during routine primary care…

A RARE conversation: RARECast podcast interview with Amy Brin

Just before the holidays, our own Amy Brin was a guest on the RARECast podcast, a podcast by Global Genes that’s hosted by Daniel Levine. RARECast…

CNF Top 8 of 2018

As this year draws to a close and we get ready for the year ahead, it’s important to look back at everything we’ve accomplished in…

Apply Now for CNF Family Grants

In 2014, the Harnett Grant was founded by Mr. Michael Harnett, as an enduring memorial to his nephew, Brendan Michael Harnett. Brendan was diagnosed with infantile spasms…

Seeking Family Perspectives on Transitions

Are you a parent or caregiver of an individual age 12-30 years living with a complex neurologic condition who is not expected to live fully…

Not Your Typical Transitions Symposium

Join us at the Child Neurology Society Annual Meeting in Chicago on October 18 for this year’s CNF Symposium! Since 2015, CNF hosts a half-day…

Rare Access to Critical Therapies (ACT) Stakeholder Summit

CNF is proud to be co-convening the first of-its-kind All Stakeholder Access to Critical Therapies Summit with Global Genes on October 5, 2018 in Irvine, CA. The…

CNF Earns 2018 GuideStar Platinum

CNF Earns the 2018 GuideStar Seal of Transparency Child Neurology Foundation today earned the 2018 Platinum GuideStar Nonprofit Seal of Transparency, the highest level of…

Transitioning to an Adult Provider: Are You Ready?

GET READY!18M adolescents, ages 18–21, reaching adulthood, will need to transition from pediatric to adult health care in the US "In cases where the adolescent lives…

FDA Approves Epidiolex®

The Child Neurology Foundation is pleased with the Federal Food & Drug Administration’s (FDA) approval Epidiolex ®, first prescription pharmaceutical formulation of highly-purified cannabidiol (CBD)…

New Online Course on Infantile Spasms

New Online Course from American Academy of Pediatrics (AAP) and American College of Emergency Physicians (ACEP) - Infantile Spasms: Early Recognition and Treatment This online…

FSEP Bootcamp

Is your organization actively working to provide peer support to your community? Are you interested in learning best practices, key elements, and effective techniques to providing peer support that…

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