Earlier this week, I got to preview CNF’s newest Access Child Neurology episodes about the transition of care. Featuring my colleagues from CNF’s Transition Expert…
What drew you to the Child Neurology Foundation and its mission? How do you see yourself contributing to the foundation’s ability to provide support for…
Hi there! I would like to introduce myself, my name is Desiree, I am a wife, mother of two girls, Adelaide 15 and Daphne 8,…
“One thing we know – when we spend our days surviving, it’s hard if not impossible to dream.” -Brad Thompson How has the Child Neurology…
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Every year, our partners at the American Academy of Neurology host a week-long conference for neurologists to gather and learn from each other at their…
The Child Neurology Foundation’s Digital Access Program provides children and families affected by neurological disorders with access to telehealth services and a community of support…
The Child Neurology Foundation is excited to announce the addition of an incredible woman to our Family Support Program staff: Vivian Medrano, Social Worker &…
Peer support is a form of emotional and practical help from somebody who has lived through a similar experience and who is trained to offer…
As the leading organizations representing the child neurology community, we stand in solidarity with our child neurology colleagues, their patients and families in Türkiye and…
The Child Neurology Foundation helps families throughout the course of their journey. Thanks to the generous support of the Harnett Family, the Child Neurology Foundation…
What CNF Families Need To Know About Medicaid Unwinding Although the COVID-19 public health emergency is ongoing, some protections are being removed. For our CNF…
Richard Poullin and Judy Wei live in Thailand with their 4-year-old daughter Rylae-Ann. Although Judy says her pregnancy and delivery were uncomplicated, when Rylae-Ann…
During our Child Neurology Awareness Day #NeuroHero campaign in October, we had several families reach out to us to share their #NeuroHero stories. One of…
In early November 2022, we previewed a new initiative of becoming stronger advocates for our families and their challenges at the national level. Now, after…
Infantile Spasms (IS) are a medical emergency. Infantile spasms are a rare, but very serious type of seizure. Infantile spasms are caused by a condition in…
Our friends at the Maternal and Child Health Bureau have shared with us that with winter still more than a month away, they are already…
CNF Executive Director and CEO Amy Brin was recently featured on the Successful Nonprofits podcast to talk about CNF’s unique ability to be a convening…
Welcome! This month CNF welcomed three new members to the board: Madeline Chadehumbe, MD Peter Kang, MD Monique Terrell Madeline Chadehumbe, MD Dr. Chadehumbe is…
Charlotte Martenz, 17 years old, experienced her first seizure at 4 months old and was diagnosed with Dravet syndrome in 2006 when she was nearly…