CNF is proud to be co-convening the first of-its-kind All Stakeholder Access to Critical Therapies Summit with Global Genes on October 5, 2018 in Irvine, CA. The…
CNF Earns the 2018 GuideStar Seal of Transparency Child Neurology Foundation today earned the 2018 Platinum GuideStar Nonprofit Seal of Transparency, the highest level of…
GET READY!18M adolescents, ages 18–21, reaching adulthood, will need to transition from pediatric to adult health care in the US "In cases where the adolescent lives…
The Child Neurology Foundation is pleased with the Federal Food & Drug Administration’s (FDA) approval Epidiolex ®, first prescription pharmaceutical formulation of highly-purified cannabidiol (CBD)…
New Online Course from American Academy of Pediatrics (AAP) and American College of Emergency Physicians (ACEP) - Infantile Spasms: Early Recognition and Treatment This online…
Is your organization actively working to provide peer support to your community? Are you interested in learning best practices, key elements, and effective techniques to providing peer support that…
2018 Child Neurology Foundation Neurodevelopmental Disabilities (NDD) Summer Research Scholarship Winner CNF proudly announces the winner of the 2018 scholarship: Ms. Brittany A. Charsar MD/PhD…
Don't Miss the 2018 PAME Conference! On June 14-16, 2018, the 4th Partners Against Mortality in Epilepsy (PAME) conference will again bring together health care providers, researchers,…
CNF Respite Care Notebook Goes International If your child lives with a special need, have you considered respite care? Developed with families, CNF created the Respite…
In partnership with UCB, a CNF 2018 Corporate Advisory Board Member, Mindspot Research is conducting online focus groups with Parents/Caregivers+ Adolescent Patients who have experienced childhood…
Join CNF as we connect with our neurology community at the 2018 American Academy of Neurology (AAN) Annual Meeting, April 21-27 in LA. Stop by CNF's…
“No journey is the same, but it is nice to know other people understand.”- Parent of a child with a neurologic condition who reached out…
Tools for Transitioning Young Adults with Neurologic Conditions Led by CNF, the consensus statement, The Neurologist’s Role in Supporting Transition to Adult Health Care* identified 8 Common Principles for…
Last month, CNF noted our commitment to children living with rare genetic conditions that have a neurologic component and introduced the RareChildNeuro 75% Fact... of…
Humans are more effective and happier when they have... someone to talk to about personal matters... someone who cares about them ... someone who can…
CNF is happy to share this opportunity from our Corporate Advisory Board Partner, Greenwich Bioscience Greenwich Biosciences is launching TakeOnEpilepsy.com to provide expert advice for…
What Does a Portrait of a Rare Caregiver Look Like? The National Alliance for Caregiving, in partnership with Global Genes, recently released Rare Disease Caregiving in America, a…
We want to change isolation to empowerment! The CNF/Global Genes Rare Child Neurology Workgroup wants to understand the needs of children living with rare genetic conditions that…
New Pilot Project Improving communication between pediatric neurologists and the families of children living with epilepsy “A majority of families wanted to discuss their child’s risk…
Parents/caregivers of 12 to 30-year olds living with a complex neurologic condition, let’s talk! CNF’s new Caregiver Perspectives on Transitions Project is interested in your experiences with different…