Navigating the world of child neurology can feel like learning to ride a bike on an uneven road—uncertain, unpredictable, and demanding every ounce of strength. For the Frantz family, this journey began before their daughter Gabriella was even born.

“We were still expecting when we got the news our baby had brain abnormalities,” recalls Kayla Frantz, Gabriella’s mother. Gabriella’s diagnosis of Aicardi Syndrome came with a future defined by infantile spasms and seizures—challenges that would test their resolve but also deepen their faith. “There were a lot of unknowns in our journey…but the one thing that continually stays the same is God’s faithfulness.”

The First Pedals: Facing the Diagnosis

When Gabriella was diagnosed, the Frantz family braced for the ride ahead. Each day brought a mix of hope and heartache, milestones and setbacks. “What would she be able to do?” Kayla remembers wondering. “What medical complications were to come along the way?” These questions became constant companions, but so did their unshakeable faith.

In those early days, their strength came from trusting in God’s plan. “When doctors couldn’t offer us answers, we truly turned to the one who created her. Every day is different in this journey…but His faithfulness has carried us through,” Kayla shares.

The Harnett Grant: A Push Forward

Now in 2024, Gabriella is the recipient of the Child Neurology Foundation Harnett Grant—a moment Kayla describes as life-changing. The grant gives new momentum to the family’s dream of getting Gabriella a service dog, something that had been stalled by the demands of everyday life and the challenges of fundraising.

“For about a year we have talked about getting a service dog for Gabriella,” Kayla explains. “Fundraising has been the biggest hold-up for us…Gabriella being chosen for this grant has been so motivating. I was really starting to feel like giving up, but this was the encouragement I needed. I cannot thank this foundation enough.”

The grant has become more than financial support; it is a reminder that their journey matters, and others are cheering them on.

Uphill Climbs: The Challenges of Infantile Spasms

The path has not been easy. Kayla reflects on some of the hardest moments, like administering injections during one of Gabriella’s more aggressive phases of spasms. “Nothing can prepare you for watching your precious baby go through spasms and helplessly standing by waiting for them to subside,” she shares.

But even on the toughest days, Gabriella’s resilience shines. “Three years of life later, she’s blown us away!” Kayla says. Milestones like hearing her voice, watching her sit and stand, and now riding her little red tricycle—a once-distant dream—are proof of her progress. “We never thought we’d hear her sweet voice speak words, never expected her to sit, stand, walk…but today, she’s doing things we prayed for and more.”

The Little Red Trike: A Metaphor for Hope

That tricycle is more than a toy, it’s a symbol of faith and determination. “Gabriella won the little red Ryder as an infant in a pageant,” Kayla recalls. At the time, the idea of her ever sitting on it felt impossible. “It brought me to tears not knowing if she’d ever be able to sit on it, let alone make it go,” she explains.

But they held onto it, just as they held onto hope. “This fall, she’s finally able to sit! We continue to pray for her legs to have the strength in the future.” Gabriella’s trike reminds us all that progress may be slow and wobbly, but every push forward is a victory.

A Message for Fellow Travelers

To families walking their own uncertain paths, Kayla offers encouragement from the heart: “You are not alone! I can’t help but share the hope of Jesus—it’s been my lifeline in every hard place. He’s never left us. There is power in prayer.”

Her message is one of resilience and connection. Whether it’s through faith, a supportive community, or sheer determination, Kayla wants others to know they can face the road ahead—and that there’s no shame in asking for a little help along the way.

Join Us in Turning Wheels of Hope

Gabriella’s story reminds us that even the smallest victories can feel monumental, like watching a child sit on a trike for the first time. The Child Neurology Foundation is honored to support families like the Frantz family through initiatives like the Harnett Grant.

Your support helps families navigate their unique journeys with strength and hope. Donate today and be part of the community that helps turn the wheels of progress for children like Gabriella.

Let’s continue to ride this road together, lifting one another up through the rough patches and celebrating every milestone along the way. Because every push forward, no matter how small, brings us closer to a future full of possibility.