The back-to-school season brings both excitement and challenges, especially for families with children who have complex healthcare needs. While meeting new teachers and reuniting with friends is thrilling, the uncertainty surrounding your child’s care, academic, and social needs can be overwhelming.
At Child Neurology Foundation (CNF), we’ve curated this resource page to help you confidently navigate the school year, with practical tips and resources tailored for your child’s unique needs.
Proven Tips and Strategies for a Smooth School Year
Connect Early with Your Child’s Teacher
Provide a simple, customized information sheet about your child that can be shared with all school staff, including educational assistants, cafeteria staff, custodians, counselors, and administrative staff.
Empower your child’s school journey with tips from the Exceptional Lives Foundation. Customize and share personalized information sheets with teachers and staff to ensure your child’s needs are understood and met.
Visit the School Before It Starts
If possible, visit the school with your child before the school year begins. This can help relieve stress and anxiety. Use this opportunity to introduce your child to their teachers and share tips about what calms your child and what might trigger anxiety.
Prepare Your Child’s Team with Up-to-Date Medical Information
Ensure that your child’s team is equipped with current, relevant medical information. For example, if your child has seizures, make use of the Child Neurology Foundation’s Seizure Action Plan.
Download the Seizure Action Plan to ensure all team members know what to do in case of an emergency.
Printable / Fillable / Español
Understand Your Child’s IEP or 504 Plan
Be familiar with your child’s Individualized Education Plan (IEP) or 504 plan. Knowing the goals, accommodations, and modifications will help you effectively advocate for your child.
Explore tips from the Pediatric Epilepsy Surgery Alliance to become more informed and better prepared.
Advocate Fearlessly for Your Child
Don’t hesitate to advocate for your child’s needs. While schools have many experts, you are the expert on your child.
Learn how to advocate effectively with this guide from Global Genes.
IEP and 504 Resources
The Pediatric Epilepsy Surgery Alliance has created a comprehensive guide for caregivers on the IEP process from start to finish.
Watch this video where Audrey Vernick walks you through the available resources, from “All About Me” documents for teachers to “IEP at a Glance” tools.
Navigating the IEP Process
This free, online, self-paced course helps you understand everything you need to know about IEPs.
Special Education Resource Guide
This comprehensive spreadsheet is designed for parents, caregivers, and educators navigating school and learning after epilepsy surgery. Each tab covers assessments, specially designed instruction, supplementary aids and services, and more.
Additional Information on School and Learning
