A Letter from Dr. Anup Patel, President of CNF Board of Directors, and Dr. Bruce Cohen, President of the Child Neurology Society The end…
Last month, CNF had the opportunity to speak with the White House Office of Science & Technology Policy (OSTP) about our Digital Access, Transitions of…
CEO Amy Brin on the difference, new AAP guidelines, and what families and doctors should know about palliative care In my years of experience working…
Pediatric development expert on what the new CDC milestones mean for you In February of 2022, the Centers for Disease Control (CDC) and American Academy…
LEXINGTON, KY., May 3, 2022— The Child Neurology Foundation (CNF) is pleased to be recognized by the Office of Disease Prevention and Health Promotion (ODPHP)…
How CNF’s Digital Access Program made a difference for the Torp family Access to technology is no longer a luxury. In this connected world, it’s…
Coming from the Leukemia & Lymphoma Society, and before that the Chordoma Foundation, Breanna has established herself as a leader in the rare disease nonprofit fundraising…
CNF partners are invited to participate in the pilot program – to learn more about the Neurology Social Services Network, watch our video. LEXINGTON, KY…
While it might feel like a relief to finally have a referral for a child neurologist after what could have been a months-, or years-long,…
      CNF – CNS Joint Statement on the Invasion of Ukraine The Child Neurology Foundation envisions a world in which…
Your story matters. In 2022, CNF will convene its first-ever Patient Experience Bureau (PEB) consisting of parents, caregivers, and young adults to raise our shared…
Families living with neurological diagnoses show unbelievable courage and resilience each day. And since it’s our mission to provide them with the tools and resources…
Rare diseases are anything but rare to us. According to the National Institute of Health, 40% of rare disorders have a neurological component, and 90%…
From February 14 to 21, the Second Annual Seizure Action Plan Awareness Week will highlight the importance of having a seizure action plan in place. The…
Child Neurology Foundation CEO Amy Brin Appointed to National Institutes of Health Council Brin to serve on National Advisory Neurological Disorders and Stroke Council LEXINGTON,…
We leave no stone unturned as we look for ways to support our families and advance the field of child neurology. That’s why we’re always…
When Kathy Leavens – mother of four boys, two of whom were diagnosed with neurologic conditions – found herself spending hours researching symptoms, treatments, or…
This document gives an overview of the goals we are setting out for the next three years, as well as the initial deliverables we will…
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