2018

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2018
CNF Top 8 of 2018

As this year draws to a close and we get ready for the year ahead, it’s important to look back at everything we’ve accomplished in…

Apply Now for CNF Family Grants

In 2014, the Harnett Grant was founded by Mr. Michael Harnett, as an enduring memorial to his nephew, Brendan Michael Harnett. Brendan was diagnosed with infantile spasms…

Seeking Family Perspectives on Transitions

Are you a parent or caregiver of an individual age 12-30 years living with a complex neurologic condition who is not expected to live fully…

Not Your Typical Transitions Symposium

Join us at the Child Neurology Society Annual Meeting in Chicago on October 18 for this year’s CNF Symposium! Since 2015, CNF hosts a half-day…

Rare Access to Critical Therapies (ACT) Stakeholder Summit

CNF is proud to be co-convening the first of-its-kind All Stakeholder Access to Critical Therapies Summit with Global Genes on October 5, 2018 in Irvine, CA. The…

CNF Earns 2018 GuideStar Platinum

CNF Earns the 2018 GuideStar Seal of Transparency Child Neurology Foundation today earned the 2018 Platinum GuideStar Nonprofit Seal of Transparency, the highest level of…

Transitioning to an Adult Provider: Are You Ready?

GET READY!18M adolescents, ages 18–21, reaching adulthood, will need to transition from pediatric to adult health care in the US "In cases where the adolescent lives…

FDA Approves Epidiolex®

The Child Neurology Foundation is pleased with the Federal Food & Drug Administration’s (FDA) approval Epidiolex ®, first prescription pharmaceutical formulation of highly-purified cannabidiol (CBD)…

New Online Course on Infantile Spasms

New Online Course from American Academy of Pediatrics (AAP) and American College of Emergency Physicians (ACEP) - Infantile Spasms: Early Recognition and Treatment This online…

FSEP Bootcamp

Is your organization actively working to provide peer support to your community? Are you interested in learning best practices, key elements, and effective techniques to providing peer support that…

2018 NDD Scholarship Winner

2018 Child Neurology Foundation Neurodevelopmental Disabilities (NDD) Summer Research Scholarship Winner CNF proudly announces the winner of the 2018 scholarship:  Ms. Brittany A. Charsar MD/PhD…

Don’t Miss the 2018 PAME Conference!

Don't Miss the 2018 PAME Conference! On June 14-16, 2018, the 4th Partners Against Mortality in Epilepsy (PAME) conference will again bring together health care providers, researchers,…

CNF Respite Care Notebook Goes International

CNF Respite Care Notebook Goes International If your child lives with a special need, have you considered respite care? Developed with families, CNF created the Respite…

Be Part of an Online Chat re: Childhood Absence Seizures

In partnership with UCB, a CNF 2018 Corporate Advisory Board Member, Mindspot Research is conducting online focus groups with Parents/Caregivers+ Adolescent Patients who have experienced childhood…

Going Back to Cali ? ? ? 

Join CNF as we connect with our neurology community at the 2018 American Academy of Neurology (AAN) Annual Meeting, April 21-27 in LA. Stop by CNF's…

Our Small Program with a Global Impact: FSEP

“No journey is the same, but it is nice to know other people understand.”- Parent of a child with a neurologic condition who reached out…

Free Downloads – Transitions Tools for Use in Practice

Tools for Transitioning Young Adults with Neurologic Conditions Led by CNF, the consensus statement, The Neurologist’s Role in Supporting Transition to Adult Health Care* identified 8 Common Principles for…

Rare Neuro Disease: Collection of Reports

Last month, CNF noted our commitment to children living with rare genetic conditions that have a neurologic component and introduced the RareChildNeuro 75% Fact... of…

Collaborative Peer Support Workgroup

Humans are more effective and happier when they have... someone to talk to about personal matters... someone who cares about them ... someone who can…

Help Build New Resource for Rare/Severe Epilepsy

CNF is happy to share this opportunity from our Corporate Advisory Board Partner, Greenwich Bioscience Greenwich Biosciences is launching TakeOnEpilepsy.com to provide expert advice for…

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