Tomorrow, December 1st, Kicks Off Infantile Spasms Awareness Week (ISAW) Identifying infantile spasms (IS) is critical for parents, caregivers, and providers. The earlier a…
“No journey is the same, but it’s nice to know other people understand.” “I came across your site and I would like for you…
It seems that every day over the next week has a special name: Black Friday, Small Business Saturday, Cyber Monday, so CNF has decided that today is…
Let’s Talk About Sudden Unexpected Death in Epilepsy (SUDEP): A Conversation with Parents and Doctors Webinar | November 17, 2017 | 12-1:15 pm (ET) | …
Social Media Network for CNF Partners When we introduced our new CNF Partners email list earlier this year, we conveyed that Pathways, our monthly e-Newsletter…
Outcomes & Resources | 2017 CNF Educational Initiative: SUDEP CNF’s Board of Directors selected Sudden Unexpected Death in Epilepsy (SUDEP) as the…
Our Tuesday “O&A” is typically a single topic email, but SO much has happened in the past week while CNF was at the annual Child…
CNF Approved for a $50,000 Funding Award by the Patient-Centered Outcomes Research Institute – The Child Neurology Foundation (CNF) has been approved for…
NOMINATIONS NOW ACCEPTED FOR: IS HOPE AND IS HEROES AWARDS The Infantile Spasms Action Network will once again sponsor Infantile Spasms Awareness Week from December 1…
Applications for the 2017 Harnett Mini-Grant: Now Being Accepted In January 2014, the Harnett Mini-Grant was founded by Mr. Michael Harnett, as an enduring memorial…
Our largest and most diverse program helps to support youth, families, and child neurology teams in the medical transition from pediatric to adult health care…
CNF is looking ahead to 2018. We always give our partners a voice in where we should focus our efforts next… so please let us…
Child Neurology Foundation is excited to share an exceptional resource, developed for families, by our partners at Pediatric Stroke Warriors. For some, the very thought of…
Comic Book, “Understanding Transitional Care in Epilepsy” Now Available “Understanding Transitional Care in Epilepsy” is the 6th comic book in the “Medikidz Explain Epilepsy” series.…
Scientific and medical communities have called the shortage of investigators a crisis that will impact far more than the 50 million Americans currently affected by…
In late July, CNF worked with a director and film crew to shoot videos that would illuminate the complexity of transition of care for young…
Child Neurology Foundation is conducting a survey concerning knowledge and communication about epilepsy between medical professionals and families. Results will be used to improve conversations…
First antiepileptic drug (AED) to apply FDA’s regulatory pathway of extrapolation for monotherapy use; FDA proposed using this pathway to get monotherapy options to…
Our partners at the Tuberous Sclerosis Alliance are now offering their 3rd annual TS Alliance Junior Leader Program. If you are a young adult affected…
Each year, CNF selects a topic to be the focus of its child neurology community educational initiative. For 2017, CNF selected Sudden Unexplained Death in Epilepsy (SUDEP)…
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