•	Child Neurology Society

General Reference

•	Canadian Organization for Rare Disorders
•	Consumer Health Education Center
•	Doctor Finder
•	Easter Seals
•	Exceptional Parent
•	FDA Consumer Drug Information
•	The Family Village
•	Genetic Alliance
•	Healthfinder
•	Heredity Disease Foundation
•	March of Dimes
•	MEDLINEplus
•	National Association of School Nurses
•	National Organization of Disorders of the Corpus Callosum
•	National Organization for Rare Disorders
•	National Institutes of Health
•	National Library of Medicine
•	National Rehabilitation Information Center
•	Neurologychannel.com
•	Neuromuscular Disease Center
•	Neurosciences on the Internet
•	Online Mendelian Inheritance in Man
•	Parents Helping Parents
•	PubMed
•	Safe Medication
•	US Department of Health and Human Services
•	WE MOVE (Worldwide Education & Awareness for Movement Disorders)
•	WE MOVE’s Movement Disorder Virtual University
•	Web MD

Disease Specific

ADD/ADHD

•	ADD Resources
•	Attention Deficit Disorder Association
•	Center for Development & Learning-Kennedy Krieger
•	CHADD: Children & Adults with ADHDisorders

Aphasia

•	National Aphasia Association

Ataxia

•	Ataxia MJD Research Project, Inc.
•	Friedreich’s Ataxia Research Alliance (FARA)
•	National Ataxia Foundation

Autism

•	Autism National Committee
•	Autism Research Institute
•	Autism Society of America
•	Autism Speaks & Cure Autism Now
•	Center for Study of Autism
•	Cure Autism Now
•	Growing Minds Autism Programs

Barth Syndrome

•	Barth Syndrome Foundation

Batten Disease

•	Batten Disease Support and Research Association

Benign Essential

•	Benign Essential Blepharospasm Research Foundation, Inc.

Brain Injury

•	Brain Injury Association of America
•	Coma Recovery Association

Canavan

•	Canavan Research Foundation

Cerebral Palsy

•	Cerebral Palsy Consortium
•	National Disability Sports Alliance (NDSA)
•	United Cerebral Palsy Association

Charcot-Marie-Tooth

•	Charcot-Marie-Tooth Association (CMTA)

Creutzfeldt-Jakob Disease

•	Creutzfeldt-Jakob Disease Foundation, Inc.

Down Syndrome

•	Canadian Down Syndrome Society
•	Down Syndrome Information Network
•	International Mosaic Down Syndrome Association
•	National Down Syndrome Congress
•	National Down Syndrome Society

Dystonia,

•	Affiliated National Dystonia Associations
•	Bachman-Strauss Dystonia and Parkinson’s Foundation
•	Care4Dystonia, Inc.
•	Dystonia Medical Research Foundation

Epilepsy

•	American Epilepsy Society
•	The Dravet Syndrome Foundation
•	Epilepsy Canada
•	Epilepsy Foundation of America
•	IDEA Leaugue, International Dravet syndrome Epilepsy Action League
•	International League Against Epilepsy
•	United Mitochondrial Disease Foundation

Essential Tremor

•	International Essential Tremor Foundation

Fabry Disease

•	International Center for Fabry Disease

Family Care and Respite

•	Family Caregiver Alliance
•	National Alliance for Caregiving
•	National Family Caregivers Association
•	ARCH Respite Care Network

Headach/Migraine

•	American Council for Headache Education (ACHE)
•	National Headache Foundation
•	World Headache Alliance

Joubert Syndrome

•	Joubert Syndrome Foundation & Related Cerebellar Disorders

Leukodystrophy

•	United Leukodystrophy Foundation

Mental Retardation

•	American Association on Mental Retardation
•	Arc of the United States

Metabolic Disorders

•	CLIMB
•	Society for Inherited Metabolic Disorders

Mitochondiral Disorders

•	CURE- Citizens United for Research in Epilepsy
•	United Mitochondrial Disease Foundation

Movement Disorder

•	Movement Disorder Society (MDS)

Multiple Sclerosis

•	Multiple Sclerosis Association of America
•	Multiple Sclerosis Society of Canada
•	National Multiple Sclerosis Society

Muscular Dystrophy

•	Cure CMD
•	Muscular Dystrophy Association
•	Muscular Dystrophy Family Foundation, Inc
•	Society for Muscular Dystrophy Information International.

Neurofibromatosis

•	Neurofibromatosis, Inc.
•	The Children’s Tumor Foundation

Neurotransmitter Diseases

•	Pediatric Neurotransmitter Disease Association

Parkinson’s

•	American Parkinson Disease Association
•	National Parkinson’s Foundation
•	Northwest Parkinson’s Foundation
•	The Parkinson Alliance
•	Parkinson’s Disease Foundation
•	Parkinson’s Institute

Prog Supranuclear Palsy

•	Society for Progressive Supranuclear Palsy

Restless Legs Syndrome

•	Restless Leg Syndrome Foundation

Rett

•	International Rett Syndrome Foundation
•	Rett Syndrome Research Foundation

Spastic Paraplegia

•	Spastic Paraplegia Foundation

Spinal Cord Injury

•	American Spinal Injury Association
•	Christopher and Dana Reeve Paralysis Resource Association
•	National Spinal Cord Injury Association
•	Spinal Muscular Atrophy-Families of SMA
•	United Spinal Association

Stroke

•	American Stroke Association
•	Children’s Hemiplegia and Stroke Association (CHASA)
•	Heart and Stroke Foundation of Canada
•	National Institute of Neurological Disorders & Stroke (NINDS)
•	National Stroke Association
•	Stroke Center

Sturge-Weber

•	Sturge-Weber Foundation
•	Sturge-Weber Foundation (Canada) Inc.
•	Sturge-Weber Syndrome Community

Tourette Syndrome

•	Tourette Syndrome Association (TSA)
•	Tourette Syndrome Foundation of Canada

Tay-Sachs

•	National Tay-Sachs and Allied Diseases Association

Tremor

•	Tremor Action Network

Tuberous Sclerosis

•	Tuberous Sclerosis Alliance

Wilson’s Disease

•	International Wilson’s Disease Association
•	Wilson Disease Association

Williams Syndrome

•	Williams Syndrome Association
•	Williams Syndrome Foundation

Pharmaceutical Information

•	Abbott Laboratories
•	Allergan
•	Elan Pharmaceuticals
•	Eli Lilly & Co.
•	GlaxoSmithKline
•	Merck
•	Novartis
•	Ortho-McNeil
•	Pfizer, Inc
•	Shire Pharmaceuticals.
•	Sigma Tau
•	UCB Pharma

 

Societies and Academies

•	American Academy for Cerebral Palsy and Developmental Medicine
•	American Academy of Neurology
•	American Academy of Pediatrics
•	American Academy of Physical Medicine & Rehabilitation
•	American Academy of Psychiatry and Neurology
•	American Association of Neuromuscular & Electrodiagnostic Medicine
•	American Association of Neuroscience Nurses
•	American Congress of Rehabilitation Medicine
•	American Neurological Association
•	American Physical Therapy Association
•	American Speech-Language-Hearing Association
•	American Society for Experimental NeuroTherapeutics
•	American Society for NeuroRehabilitation
•	American Society of Neuroimaging
•	Association of Child Neurology Nurses
•	Association of University Professors of Neurology
•	Canadian Congress of Neurological Sciences
•	Center for Neurologic Study
•	European Federation of Neurological Sciences
•	European Neurological Society
•	International Child Neurology Association
•	International Neuromodulation Society
•	International Steering Committee of Movement Disorder Nursing Societies (ISC)
•	Movement Disorder Society
•	National Brain Injury Research, Treatment, and Training Foundation
•	National Society of Genetic Counselors
•	Society for Neuroscience
•	World Federation of Neurology